Shine the Light on Sickle Cell Disease Community Gathering on World Sickle Cell Awareness Day

In celebration of the 10th Anniversary of World Sickle Cell Awareness Day the South Central PA Sickle Cell Council hosted a “Shine the Light on Sickle Cell Disease” community gathering on June 19th.

“In our community, together with others in communities across the nation and around the world, we are standing up and speaking out to increase awareness, build support networks, raise critical resources, and strengthen our collective resolve to advocate for access to sickle cell services and a cure for sickle cell disease’” states Debra Bizzard, the Council social worker and one of the local Shine the Light on Sickle Cell Disease organizers.   

In 2008, The General Assembly of the United Nations passed a regulation designating June 19 as World Sickle Cell Awareness Day to be held annually starting in 2009. Since then it has served as a way to help increase public knowledge and raise awareness of this worldwide public health concern and the struggles that those with Sickle Cell Disease (SCD) and their families go through on a daily base. The resolution, initially sponsored by the Congo, has helped to elevate awareness of Sickle Cell Disease as a serious public health concern affecting more than 100 million people around the world. 

This year, the South Central PA Sickle Cell Council, and community-based organizations all across the nation, organized gatherings to help “Shine the Light on Sickle Cell Disease” while celebrating the 10th Anniversary of World Sickle Cell Disease Awareness Day.